Gramercy Park, This is an Emergency! Our Ellie is gone…

Where are you sweet Ellie?!!!!   You left without saying goodbye!!   What the heck?! This is not the way it was supposed to be!!  You fought so hard, for so long, you kept your cool and kicked ALS’s arse so many times that I thought you were going to be THE ONE, the freaking one to beat it! … You deserved it, You earned it !  What the bloody hell! …. YOU DID!  You know what I mean?!

I was waiting for your next stories… you said you had so much to tell us… you promised! …or did you?  I thought you did…  Your last post was so beautiful!  It took my breath away! “The Journey Home” … what a gift you gave us!  -perhaps you knew?  I’m sure you knew it wasn’t this home you were talking about, that’s why you had to come back so desperately… –  The post was magnificent,  just like you my dear, witty, naughty, irreverent you, incomparable and unique YOU, dearest Ellie…  THANK YOU!    God Bless you!!!-   I’m so glad you got to do that, I’m so glad you left France on a high note and I’m so glad you had that magic opportunity to reconciled with your beloved Provence… It couldn’t have been any other way!  You were able to have everything you always loved and enjoyed so passionately and fiercely, in one magic place for one last time … I’m grateful you made it home to your precious Santa Barbara, I’m grateful you made it to “Merica”, that’s all you wanted!

Are you running in Gramercy Park now Ellie?  Are you finally carefree, blissful, unafraid?!  Are you jumping up and down, and skipping over the cracks of the sidewalk, peering into the bottom windows of the brownstones you wanted so bad to be able to afford?  Are you doing all that like you said you would?!   Tell me you are spinning around in circles, hair floating, arms stretched as far as possible, head in the clouds like you always had, face lifted towards the sky staring into heaven with eyes wide open … Please… let us know you are!

I wonder….  If we were really careful, and would pay really close attention, and would keep really quiet … I wonder if we would we be able to hear your laughter mixed with the wind blowing through the treetops and among the roses…

I think you are in Gramercy Park right now…I can almost see you…now you don’t need to bargain with God for five more minutes of freedom anymore my dearest and bravest Ellie, YOU GOT IT … you are finally free, unbounded and limitless…You are finally Home.

Here is one of my favorite post of yours, “Don’t Mind if I Do, Gramercy Park” one that moved and touched every fiber of my soul. I want people to read it and get to know you, I want everybody to have that joy….

What are “We”, your “imaginary friends”  -like Gracie used to call us-   going to do without you?!   It seems like we were part of something special and magic that others won’t be able to understand…  I’m going to miss people I don’t even know!  I’ll especially miss   Penelope Bianchi,  Stephen Andrew,  Heather of Lost in Arles, La Contessa , Hollie of The silver Pen , so very dearly, and others I got to know over there in your brilliant, hysterical, smart, emotional, profound, refreshing, and freakingly honest BLOG  Have Some Decorum

I guess is time to say goodbye … but it seems I’m not able to do that just yet … I’m not ready…it’ll only have to be  à bientôt for now…   I LOVE YOU sweet Ellie O’Connell, and I’ll be seeing you in my dreams.

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And here you are, for those of you who don’t know you, with your husband David, the French guy.   Ashtonishingly  beautiful !

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And here You are with Gracie, Amazing Grace, like you liked to called her!

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…. and here you are with mom… “Look, I can walk!” That’s what you said about this picture!! You blew my mind !  You really never lost it….  you were the coolest chick in town, and still are,  your spirit keeps going on for ever ….

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Don’t mind if I do, Gramercy Park…

 

In Manhattan, New York there is a very special park called Gramercy Park. This park is so special that it’s private and can be only accessed by those #LuckyDucks who live on Gramercy Park. And they get a key. The golden key to Gramercy Park. Be jealous, be very jealous.

But, guess what? As part of an old New York charitable holiday tradition, the gates to Gramercy Park are open to us losers on Christmas Eve! The Gramercy Park church, Parish of Calvary St.George, will also be having carolers starting at 6 PM in the park. This is absolutely not to be missed!

You may be wondering why I am so excited about this. Well, it’s hard to even write this without crying, but Gramercy Park happens to be the last place I was before, minutes before, I was diagnosed with ALS. I thought that I would let you guys in on a chapter of my book about it. I should have my book finished by March but I thought you guys would like a preview of the Gramercy Park chapter.

Here it is…

Gramercy Park

Gramercy Park on the lower East side of Manhattan has always held a special place in my heart. The name alone just sounds cool. Then there is the Gramercy Park Hotel designed in part by one of my favorite artists, Julian Schnabel, with its amazing color scheme of rosy reds, Fire King green and sapphire blues. Then there is the architecture of the brownstones around the park. A little village within a big city. And then there is the garden. The secret private garden to which only a lucky few hold the keys.

I always feel like a little part of me is still in Gramercy Park. Like a little bit of me is still wandering around the park… The part of me that doesn’t have ALS.

As I walked out of the offices of 1stdibs on my lunch break casually walking to the neurologist office for what I thought would be a quick appointment, I never imagined that this would be my last carefree walk. Physically it was not a carefree walk because I had a strange limp and I was worried that every crack in the sidewalk would cause me to fall flat on my face. Mentally, all I was thinking about was the beautiful park.

I walked past the church at the corner of the park and I remember saying to myself, “On my way back from the neurologist appointment, I need to stop at the church and check out their little thrift shop.” I was thinking that I needed to come back to the Gramercy Park Hotel for cocktails later that week with my girlfriends. I was thinking, “God, I wish I could afford one of these brownstones around the park.” My mind floated around thinking how beautiful and lush the little garden was and if the residents who held the coveted key to the garden could grow tomatoes in there.

What I was thinking about was just… Nothing. Now all I think about is… Everything. That five-minute walk in Gramercy Park was the last trace of who I used to be. That girl was like you… She had worries but they were just regular worries. Can I pay my rent this month? Is Gracie getting good grades in school? Does David love me more than his ex-wife? Why are my friends such bitches? Will I ever forgive my father? You know, regular worries. My days were normal…wake up, deal, go to bed. I walked around Gramercy Park that day with my head in the clouds and what I would give to go back to that day.

Sometimes I close my eyes and try to remember that moment in Gramercy Park before I walked into the doctor’s office. I can see it, feel it, smell it and almost taste it. I want to remind myself of who I was before and what it felt like to be carefree. I haven’t been carefree since that day. I want to cherish those few moments and have them emblazoned in my soul so I don’t ever forget what it was like… Before.

Sometimes I beg God to just let me have those few moments of liberty back. Let me just walk around the park again without knowing my fate. Let me be ignorant, let me be blissful, let me be unafraid. If I could just have back a few moments… I would run around that park smelling every flower letting myself get pricked by a rose thorn. I would pop into the hotel and grab a cappuccino. I would peer into the bottom windows of the brownstones. I would skip over the cracks of the sidewalk. I would walk down the tiny broken steps of the church thrift store and pick things up and put them down at my leisure. Hell, I might even stretch out my arms, lift my head to the clouds, start spinning around in circles and sing a little song. At the end of my allotted time, I imagine I would try to renege on my deal with God and I would ask for more time. Don’t make me go forward to my life with ALS. Let me just stay in this park without ALS. Just give me another few minutes… This time I will cherish it, I promise.

So I encourage all of you to get over to Gramercy Park on Christmas Eve…

 

Ellie xoxo

Empty Spaces… Good Bye Elie Wiesel

You closed those eyes that saw too much, and took with you the sorrow in them,
that hunting look, the searing pain, of someone who once was broken, stolen, betrayed, by infamy and hate.

You picked up your own pieces, in a horror nightmare like Guernica, and put yourself back together,
and those empty spaces, where the parts of you were missing,
gone in the burning hell of Auchwitz forever,
you replaced them with light and filled them with hope,
and you walked away from evil,
you left it behind,
and your wounded soul, spilled its light around the world, through the million little cracks left open and sore…

Who would fill those empty spaces, left by you now that you are gone, dear Elie Wiesel?

Rest in peace and  shine from above… Now your family is finally back together!  ….

… But the world surely feels darker without you.

There are victories of the soul and spirit,  sometimes, even if you lose, you win.

Elie Wiesel 

Good Morning Sunshine! Beautiful Inspiration

The beautiful photography of @anatseem

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It seems that now-a-days we find our selves, more often than not, in serious need of inspiration, a lift, a push, something…. Perhaps it’s because we have access to the news 24/7 in so many ways that it’s impossible to escape all the emphasis in the negative. There must be countless acts of heroism and kindness happening all over the world every second but those are not reported. We need them, we need to know of them. How are we supposed to hold on if we only focus on how horrible we are and how low we have allowed our selves to descend?

My heart breaks with so much sadness for all the cruelty and craziness we are exhibiting as a human race. Animals have proven by far to be infinitely better than we are.   In the midst of all this madness I find myself  uplifted and renewed when by chance I get smashed in the face with the beauty of art. Yes, as always and from the beginning of creation, we have the privilege through art to have a glimpse into another soul, the soul of an artist that through his craft show us or remind us of how beautiful life is or can be.

Today I want to share the work of a gifted photographer whose name I don’t even know. I stumbled into her work in Instagram where she goes by @anatseem   I googled her, of course, but couldn’t find any additional information. While looking at my IG a new post of hers showed up and left me speechless. She takes mostly photos of who I imagine is her daughter, silhouettes of her playing in the light. There is a purity and innocence about them and so much love and artistry. I can’t judge photography or other art forms because I’m totally unqualified for the task. What I can do is share the things I love and move me.  I needed this today. I was in serious need of inspiration, my heart needed a hug and she gave it to me through her art. Enjoy and let me know what you thought of her work please and definetly visit her in Instagram.  Have an awesome weekend and make it count!  Thank you so much for visiting, I can’t believe we are aproching 18,000 views already!


  
  
  
  
  
  
  


  
  
  
  
  
  
  
  
  
  
  
  
  
  
  
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What a wonderful world…

I see trees of green…

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I see….

Red roses too…

 I see them bloom…

For me and you…

for me and you

for me and you

And I think to myself…

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what a wonderful world…


What a wonderful world!

  

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I see skies of blue…

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and clouds of white…


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And clouds of bright…

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the bright blessed day

The bright blessed day…

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The dark secret night…

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the dark secret night…

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And I think to myself, what a wonderful world!


The colours of the rainbow, so pretty in the sky…

so pretty in the sky 
Chagall

Are also on the faces of people going by…

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Picasso
Klimt 
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of people going by…
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are also on the faces….
on the faces…
beautiful faces…

I see friends shaking hands, saying, how do you do?…

Friends
old friends…
shaking hands…
They are really saying….

They are really saying, I love you!

I love you 
I love you…
I love you, I do…


  
  

I love you 

I hear babies crying…

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I hear babies crying…

I watch them grow…

I watch them grow…

  

They’ll learn much more than I’ll ever know!


  


And I think to myself, what a wonderful world!

and I think to myself…
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what a wonderful world…

And I think to myself, what a wonderful world!



Louis Armstrong 

 

 

 

 

 

 

 

 

Beautiful Inspiration

SOMETIMES A PICTURE IS WORTH A THOUSAND WORDS, SOMETIMES A FEW WORDS ARE WORTH A THOUSAND PICTURES…

HAVE AN INSPIRED AND GREAT WEEKEND!

Gratitud changes EVERYTHING
Gratitud changes EVERYTHING

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You are a LIVING magnet...
You are a LIVING magnet…

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Be happy for THIS moment..
Be happy for THIS moment..

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The creative adult is the child who SURVIVED!
The creative adult is the child who SURVIVED!

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I AM more than what you SEE..
I AM more than what you SEE..

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Tough times don't last; Tough people DO
Tough times don’t last; Tough people DO

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Imagination encircles the world….

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You
You have more to do than be weighed down by pretty or beautiful….
You
You 
you are
.
The earth has music..
The earth has music..
Don't
Henri Cartier-Bresson 
Just three things...
Just three things…
There are
There is only one happiness in life…
There is only one
There is only one happiness in life, to love and be loved.

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She turned her can't
.
She turned her can'ts...
.

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